Bah. I couldn't sleep until after dawn for some reason, my brain wouldn't shut up long enough. I wouldn't have been able to rest at all, especially once the "lack of sleep" neuro-pain set in, but at 6am I took some Neurontin (for both pain and sleep) and napped until my usual auto-awakening time of 7:30am. This post will thus be quite disjointed. :-(
I "went to bed" around midnight, but then didn't feel tired enough to sleep, so I started reading Temple Grandin's first autobiography, Emergence: Labeled Autistic. That became disturbing after a while, because all of the comments about her, as well as her second autobiography (Thinking In Pictures), had made me think she's among the most severely autistic -- only to find in Emergence that it's not the case. Her autistic traits are uniformly weaker than mine are.
So I put that book down, and turned my Clie to my ebook copy of a very funny novel, The Curious Incident of the Dog in the Night Time by Mark Haddon. I forget exactly how I heard about this book... It's a humorous "murder mystery" novel by (iirc) an undx-Asperger's man with a HFA son, and the main character is completely written accurately from a HFA/AS boy's viewpoint. The result, as he persistently does or says precisely what NTs do not expect (or appreciate!) is entertaining in a cathartic sense, and having it written in the same mental "voice" that I have (but usually conceal from others), with the same feelings, is engrossing as well.
However, I also realized, as with the earlier book, that this child understands concepts that I only figured out a year or two ago. White lies, for example, made no sense to me, seemed no different from full-out lies, until I was about 24.5 years old. (The sense of power and mischief in using them amuses me now.) He also explains other things I still didn't realize about communication that he is taught by his aide, such as that the speed and amount of air one expells audibly through one's nostrils alters what it means, and that raised eyebrows (as well as virtually every other gesture, I suspect) can similarly mean multiple things.
I had a short conversation with my mother yesterday -- short because I was overloaded and hiding. She told me about a commercial that was meant to be funny, in which a growing male does a number of dangerous things throughout his life, and his mother keeps saying "I don't know how he'll live to twenty" only to have him become an adult, produce a girl, and say the exact same thing about her. I told her that it didn't seem funny, it seemed like an example of incompetent parents failing to keep their children out of danger. She responded with, "no, that's just the kind of things kids do." I paused a second, thinking back on my childhood, then responded "I didn't." To which my mother sighed and answered "I know."
It always used to seem ridiculous to me that the government had decided that I am too "permanently" developmentally delayed to function in society -- because all I have really known, until the past several months, is that I am highly intelligent, the sort of person that gets an "A" on both junior and senior theses at Berkeley with little effort. What I didn't realize, but evidently others in my life did, was how severe the delays outside that particular intelligence were. It makes more sense that they consider me permanently delayed, I just wish I knew beyond one test how they figured it out.
I read several months ago that spectrum females in relationships tend to become so stressed just handling it that they shut down otherwise. I think that this is happening to me -- I am always tired, too blah to stim, keep losing interest in things instead of being perseverant, my executive function & general tolerance of life are more problematic than in the past -- but I don't know what to do about it. The only option would be to not be in a relationship, but I don't really like that idea. I wish I knew how to be myself, or feel like myself, have all of my autistic hyper-energy strengths and also be in a relationship. Maybe when things are not as stressful in my life I'll be able to handle it better, and I just need to wait?
Enough rambling now, I am hungry and my neuro system is tingling/hurting all over because I didn't sleep enough... I need to have some breakfast so I can take more Neurontin -- at least that way even if I'm too relaxed by the medication to accomplish things, it will make the neurotorment go away.
Posted by moggy at November 01, 2003 09:34 AM | TrackBackThe strangest thing I have seen you do is wash network cables in the dishwasher, and I don't see that as being developmentally disabled, just idiosyncratic. :) As people get older, everyone learns more about human behavior, NT's included.
OTOH, I am probably not a great judge of what is normal. :)
I think you blame more behavioral problems on your autism than is accurate - an NT with Vater would be very stressed out and might not be able to work, and have depression and might have to take Neurontin. Also, on bad nights, you talked about having to take over 600 Neurontin (!). I have no idea if that is an excessive dose, but 600 seems way too many for safe dosing of a medication, and there may be mental side effects from taking such high doses, not to mention sinus infections and such.
About spectrum females in relationships - it doesn't sound like your feeling blah is due to the relationship, more likely your health problems. A common autie and female problem is not being able to communicate negative emotions, and finding ways to do that and communicating how you feel is important in building trust in a relationship. It also helps to let your partner know how they can be supportive of you - eg: if a three hour marathon IM chat tires you out, the other person should know that.
Posted by: Matt on November 1, 2003 06:54 PM(Talking in the third person only because of the format of who I'm replying to, no disrespect to Denise intended.) I thought she took the Neurontin for something other than stress/depression, though. From her descriptions of autistic traits, I think she has a reasonably good idea what's autistic and what's something else.
I believe she was talking about 600 *milligrams* of Neurontin, which is close to a bare minimum dose of the stuff. I take 1200 in a day, which is a standard dose.
Posted by: Amanda on November 10, 2003 09:08 PMAmanda's right... I've been very busy the last couple of years (and still am :) learning to distinguish Autism from other things in my life, insofar as that is possible, and noticing where others are different from me. I don't post about even a quarter of the things I do that are "autistic" for several reasons -- shame, the privacy of others in my life, or sometimes even because I'm unable to communicate (or care) enough to write about it or even to know what I am doing.
As for Neurontin, yes, I meant 600mg; I take it for neuropathic pain, sleep-cycle problems, and to manage anxiety in order to avoid meltdowns. Having even just three minor changes in one day will mean the choice between 300mg Neurontin or a crying shaking object-throwing confused "the world makes no sense" meltdown usually followed by an asthma flare and uncontrollable bowels. I've never heard of a 26-year-old NT reacting that severely to being driven home via a slightly different route combined with her partner not being online at the usual time on a night she knows he's going out.
I am very sensitive to it -- I range from 0 to 200mg most days, hitting 300mg on a bad day. 600mg and above is an emergency type dose for me. The result of 600+mg, if it doesn't knock me out, is severe motor control problems with an altered mental state that is totally lacking in defenses.
Posted by: Moggy on November 11, 2003 01:13 AMI am sorry about my mistakes - I was trying to be reassuring and didn't think enough about it before posting. I have had my mother make hurtful comments about my being different from the other kids, and thought writing a comment about how you don't seem too different to me might make you feel better about yourself.
It is good to hear you are not taking 600 pills of neurontin - I thought it might be one of those pain meds you have to increase the dosage to maintain the same level of effectiveness, like hydrocodone.
Posted by: Matt on November 12, 2003 05:56 AM