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11/21/96
Letter To My
Sister
(the following is a snippet from a reply to my sister about
what to expect from my visit)
<Any special requests for food next week?
No food requests but some thoughts. I don't do well in
groups of people anymore so I may be a little hermit-like at
times...can't say for sure. IF I'm able to time my meds just
right, the meal should be uneventful. I may need help
cutting my food and/or "spearing it" (seriously).
If I'm "on" and dyskinetic (squirmy), it's very
uncomfortable to try and sit between other people without
the urge to flail about from time to time. No reflection on
my dinner companions but a side-effect of Sinemet. This
should aid you in seating me.
If I'm "off", it's a given that any scintillating additions
to general conversation will be minimal on my part. I may
drop things or possibly drool (NEITHER is a given) but
please try not to let my mealtime trials and tribulations
trouble you. You could not start to believe what feeding
myself is like a lot of the time in my little abode ...
half-comic and the other-half kinda sad.
I want to enjoy the holidays like most people appear to do
but this may not happen during my visit this time. Don't
take any of the blame for this. If I don't try to keep some
social activity and try to participate in any way I still
can, my life will surely become a truly isolated experience
with cable-TV and computers as my steadfast
companions.
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