My mom
died on May 11. The rose outside her window bloomed vibrantly when
we brought her home from the hospital, but the spent petals were curling
up a week later when she took her last breaths. My parents planted
the rose in that shady spot 13 years ago, but it's barely survived, putting
out just one bloom a year for about ten days. It bloomed for my mom,
Rose Kessel Julian, who herself bloomed through 75 years sweet and exuberant
with a big spirit. She loved life and loved people; she was smart,
gregarious, fun, and funny; a great communicator, a talented peacemaker.
She knew to be thankful and revel in the blessings of each day. A
chirping bird, a breeze, a shining sun or cloud bearing rain--any were
sufficient to make her joyful. She loved my father and us three kids
from the depths of her soul.
We brought
her home with Hospice care, hoping to make her comfortable and create
a peaceful space for us to be with her, hold her hand, and share our feelings
with her and with each other. We were all with her, and some dear
friends and relatives and two deeply caring ministers from her church also
came to see her.
We were
very fortunate that decisions leading to her coming home were clearcut.
After seven surgeries and lots of radiation over ten years, she was tired.
If not for surgery, she would have died in 1989. She suffered terribly
through two difficult neck surgeries this March, which again were necessary
to save her life but left her this time in a wheelchair and with mostly
paralyzed hands, stripping her of independence and her beloved sewing and
needlepoint. After the second neck operation, mom started saying
she wanted no more surgery. Within six weeks, major abdominal problems
arose and the surgeon agreed it was pointless to put her through more pain
for probably no benefit. Her mild-mannered family doctor said he
wouldn't want to face her after she woke up from another operation.
With deep feeling glistening moistly in his eyes, he told us she was very
courageous and that with all she had been through, "she's never complained."
Even
after her doctor had made the hospice referral, getting mom released
promptly from the hospital was a struggle. Once
you're in that system, it can be hard to get out. It was crucial
to bring her home quickly though, because the first couple days she was
still talking and was frequently awake. Even after losing the strength
to talk, she communicated with subtle expressions of her eyes or by raising
her eyebrows. Each day was different and very, very precious.
The
nurses and others from Hospice were fabulous--extremely competent,
sensitive, and caring. My mother was not in pain;
when she became unable to swallow pills, we gave her a few drops of pain
medicine every couple hours, which were absorbed through the membranes
of her mouth. The nurses showed us how to moisten her lips and swab
out her mouth with a small sponge on a lollipop stick. Other major
blessings included a urinary catheter which kept her dry, and a hospital
bed with pressure relief mattress, which enabled us to position her comfortably.
We held her hand, hugged each other, and had an incredible week to say
goodbye as her rose bloomed and her spirit began to soar.
Nothing
about mom's death was morbid--she was accepting, we came to be
accepting, and she was relatively comfortable.
It was entirely natural and somehow deeply fulfilling. The whole
mortuary/coffin/graveyard experience, in contrast, seemed excruciatingly
morbid to me, and makes me wonder about our culture's attitude toward death.
These are entirely personal reactions; I won't object if anyone disagrees.
In nature, dead animal bodies are rarely seen--they are quickly taken up
by the elements. I'd like to be recycled myself; to be taken to the
desert and left for coyote and vulture. But this is illegal; even
death is no escape from bureaucracy. My survivors will need "death
certificates" to complete my affairs; to get these my body will have to
enter the system. Even if I'm cremated, I'll have to be placed in
at least a pine box first. I don't see why I should have to take
part of a pine tree with me, but this is certainly more appealing than
being embalmed, dressed up, sealed in an expensive airtight steel or hardwood
coffin, and put into a cement hole in the ground. Could it be that
the lengths we go to preserve the physical body represent our attempt to
deny the reality of death?
My mother
consciously chose casket and cemetary, so I have no quarrel with it.
It's just not what I want myself. The part of the funeral I liked
and found beautiful was how the family and relatives came together to talk
about my mother and give thanks for her life.
During
the first days of her last week, mom told me she was "totally content."
She gestured around the room (indicating she was home) and said "perfect."
My girlfriend Laura drove 12 hours to see her. Knowing she wouldn't
make it to our August wedding, mom gave Laura the ring that had come down
from my great great grandmother, and said "let's have a wedding."
Mom officiated and we said vows right there on her bed--we'll always remember
Cinco de Mayo as our "Ring Day" with mom.
A few
weeks before, she had told me that she accepted death in March, between
her two neck surgeries: "everybody's got to kick the bucket sometime,"
mom said, "what if George Washington was still around?" She led on
the path of acceptance; the week at home gave the rest of us a chance to
begin accepting as well. Not everyone has this luxury, so we should
love our loved ones now, spend time with them now, and say what we need
to say now, because we never truly know how long they'll be with us.
I believe
the week at home will prove to have given us a powerful head start in adjusting
to this enormous change. Since I've returned to my own home, a few
people have implied that I must be terribly depressed. Well, no,
I'm not. I don't plan to get any more "bummed out" than I need to
be. I've cried a lot already. If we allow ourselves to feel
our sadness in its full intensity as it arises, maybe we won't need to
get stuck in it. We can express our love through joy in living as
well as through sadness. I loved my mother, and I know she would
want us to be happy.